LDI has diverse data that focus on health care delivery for aging populations. These data resources can be leveraged for use by RCMAR Scientists and the CICADA community. Summaries of these data sources are below.
Health and Retirement Study (HRS)
1992-present, a bi-annual longitudinal household survey of the near elderly (ages 50+) in the US. Includes extensive information on income and assets, health and cognition, health care and long-term care utilization, and demographics.
HRS Linked Data
The HRS also available linked to numerous administrative and health-related databases, including Medicare and Medicaid claims; OASIS and the Minimum Data Set, 831 Disability records; Veterans Affairs health care information; Social Security reported earnings and benefit receipt; detailed clinical data on cancers, biomarkers, and genetics; and health-specific modules on diabetes, prescription drugs, and memory and cognition. It also has geographic location to the zip code.
100% of the claims for Medicare fee-for-service beneficiaries for Medicare Part A over the last decade, along with a 15% sample of all outpatient, physician, and home health claims.
Commercially insured individuals
- Health Care Cost Institute (HCCI). Detailed claims data for over 50 million people insured individually, as a group, or through the Medicare Advantage program. Four major private insurance companies contribute, representing over $1 trillion in health care spending. Includes actual prices paid for health services, expenses the insurance covered, and individual out-of-pocket payments.
- OptumInsight. Contains US health care claims from May 2000 to present, covering more than 60 million people and including inpatient and outpatient claims, pharmacy claims, and laboratory results.
- Anthem and their HealthCore data warehouse including comprehensive claims data on 44 million covered lives.
Clinical Assessment Data from Nursing Homes, Home Health Agencies, and Inpatient Rehabilitation Facilities
2010-present. All Medicare-certified facilities collect regular, detailed clinical assessment data for all residents of nursing homes [in the Minimum Data Set (MDS)], home health agencies (in OASIS), and in inpatient rehabilitation facilities (in IRF-PAI). These data include all patients regardless of insurance status and provide detailed clinical information including functional status, cognitive status, and other health information. Data can be linked to Medicare claims data.
Data on Providers
- American Hospital Association (AHA) Annual Survey, a hospital-level survey available from 1986-present containing detailed information on hospital structure and organization
- Certification and Survey Provider Enhanced Reporting (CASPER) system and its predecessor, the Online Survey Certification and Reporting (OSCAR), both of which contain nursing home data collected approximately annually during the state certification and inspection process
- SK&A Healthcare Data, an annual survey of physicians with details on physicians’ practice environment, specialties, and affiliations
Data on Markets, Including Markets for Long-Term Care (LTC)
- Area Health Resource File (AHRF), a county-level, longitudinal health care supply database, including emerging substitutes for traditional nursing homes such as assisted living facilities and home health care agencies.
- NIC-MAP database, a comprehensive seniors housing and nursing care database which tracks and reports data on market-rate independent living, assisted living, and continuing care retirement communities as well as memory care and nursing care properties located in the largest US metro markets including number of beds, rental vs. purchase, profit vs. non-profit status, unit mix, number of years in business, and latitude and longitude of the community.
Access to Data for RCMAR Scientists
The above datasets will be available for use by CICADA’s RCMAR Scientists. Because many of these datasets contain protected health information (PHI) and thus have restricted access that is governed by a data use agreement (DUA), the Analysis Core Program Coordinator will assist RCMAR Scientists by facilitating the paperwork and external approval (for example, by Medicare) required to add RCMAR Scientists to the DUA as current data users.
Health Services Research Data Center (HSRDC)
Data resources are housed on LDI’s Health Services Research Data Center (HSRDC) server, a secure server for analyzing protected patient information. Once a RCMAR Scientist’s addition to the DUA is approved and IRB approval is obtained, the RCMAR Scientist will be able to access to the server and data.
Health Economics Data Analyst Pool
The Health Economics Data Analyst Pool (HEDAP) is a Penn service center supported and managed by LDI to provide LDI-affiliated investigators access to high-quality, skilled data analysts. RCMAR Scientists will have access to a shared data analyst to provide general oversight and assistance to answer questions about and troubleshoot use of available data. In addition, through CICADA pilot funding, RCMAR Scientists can supplement Core support for HEDAP analysts to complete their projects.