Are Patients With Cancer Less Willing to Share Their Health Information? Privacy, Sensitivity, and Social Purpose

In the Journal of Oncology Practice, David Grande and colleagues, including David Asch and Nandita Mitra, assess patient views on use of health information to build population cancer databases for research and care delivery. Participants with and without cancer were randomly assigned to rate scenarios based on their willingness to share their electronic health information in each scenario. The research finds that participants with and without cancer had a similar willingness to share health information. Both patient groups identified the purpose of information use as the most important factor in their decision. The authors find that cancer participants were more willing to share their genetic information. Understanding patient views on reuse of health information is essential to shape privacy policies and build population cancer databases for research and care delivery.