Research Memo: Loss of Subsidized Drug Coverage and Mortality Following Medicaid Disenrollment: Translating our Findings and Implications for Medicaid Policy
Presented to Congressional Committee Staff
In Their Own Words
Britney Spears Chafed Under Her Guardian
Here’s Another Way For Those Who Need Help
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The following excerpt is from an op-ed that first appeared in the New York Times on April 3, 2023.
Conservative Texans and liberal Californians disagree on much in politics. But legislators in both states agree on a new approach to giving people with cognitive impairments a greater chance for self-determination. It’s called supported decision-making, and it is shaping up to be the most consequential change in the care of older people and others with limitations in mental functioning since the rise of advance care directives in the 1990s.
The difference between guardianship, the traditional way to help those with such impairments, and supported decision-making is analogous to the difference between a dictatorship and self-rule. Unlike guardianship, which creates an all-powerful guardian and strips the subject of the right to make decisions, in supported decision-making, the individual retains final control over key decisions. That person enlists one or more trusted others, such as family members or close friends, to aid him in making decisions. The supporters are there only to assist.
The National Council on Disability rightfully describes this approach as “the most promising and comprehensive alternative to guardianship.” More support for these life-affirming arrangements is needed.
Britney Spears’s public efforts to end the nearly 14-year guardianship she was under cast a light on problems with the arrangement that too often remain in the shadows. In seeking to end her guardianship, Ms. Spears testified in court: “I truly believe this conservatorship is abusive. I don’t feel like I can live a full life.” A judge in Los Angeles concluded in 2021 that the guardianship was no longer needed and terminated it.
Read the entire op-ed here.
Authors
Emily Largent PhD, RN
Emanuel and Robert Hart Assistant Professor, Medical Ethics and Health Policy, Perelman School of Medicine; Lecturer, Penn Carey Law School
Jason Karlawish, MD
Professor, Medicine, Perelman School of Medicine
Andrew Peterson, PhD
Assistant Professor, Department of Philosophy, George Mason University
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